EURORDIS
EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 738 rare disease patient organisations in 65 countries covering over 4000 diseases.
NORD (National Organization for Rare Diseases)
For more than 30 years, NORD has led the way in empowering the rare disease community.
Genetic Alliance
Genetic Alliance is one of the world’s leading nonprofit health advocacy organizations. We engage individuals, families, and communities to transform health.
Rare Disease Day
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.