The first Orphan Europe Academy workshop

Soumis par admincyim le mer 24/06/2020 - 16:19
Ranica, Italy

The purpose of the workshop was to study factor H in patients with familial and recurrent HUS/TTP. Half of the patients and relatives participated in the study during the two days clinical and research activities.

General Comments
  • "Brilliant idea to have a course like this"
  • "Excellent level of presentations, very good speakers"
  • "More useful than a congress"
  • "Good discussion sessions"
  • "Good choice of thematology"
Why did you choose the course ?
  • "To have a systematic overview about metabolic diseases"
  • "To broaden knowledge on metabolic diseases"
  • "To learn about practical things (laboratory diagnosis, diet...)"
also because...
  • "we leave a lot of children with metabolic diseases without diagnostic"
  • "This course is not offered anywhere"
  • "High quality of Professors"
  • "Opportunity to meet best professionals in the field, to hear the experts"
  • "Few metabolic training for advanced amateur"